COITSVILLE, Ohio (WKBN) – A seven-year-old boy from Coitsville is battling a rare disease that has lost his sight.
Michael Parteleno and his family hosted the Michael’s Miracle Golf Outing at the Parto Golf Learning Center on Saturday to help raise awareness about Batten disease.
There was a tough challenge that golfers had to overcome. Golfers were to play a round hole blindfold. Michael’s mom Tammy Parteleno explained that they want golfers to experience Michael’s challenge.
âWe wanted people to cross every day, without being able to see. So what will happen is that each player will be blindfolded and they will have to play one of their shots during the round while blindfolded, âsaid Tammy Parteleno.
Profits from the event help Michael fight his rare disease.
âIt’s just a fun time to try to celebrate him and help him fight his fight,â Tammy Parteleno said.
Batten disease affects about three in 100,000 children in the United States, according to the Cleveland Clinic.
Symptoms go beyond blindness and include memory loss, seizures, speech stuttering, and other cognitive issues.
Currently, there is no FDA approved treatment and any other treatment for the disease is difficult to achieve.
“He doesn’t have a very long life expectancy so we’re just trying to make sense of what he has,” Tammy Parteleno said.
âIt’s crazy for me. Last year has been amazing and we’ll probably have a few hundred people by the end of the day which is a big success, âsaid Michael’s father Tom Parteleno.