The National Organization for Rare Disorders, known as NORD, has been named the Official Charity Partner of the 2021 TCS New York City Marathon, which will be held November 7 in person and online.
“Supporting causes and charities is a long-standing tradition of the TCS New York City Marathon, as it is one of the largest fundraising platforms in the world,” said Christine Burke, Senior Vice President of Partnerships. strategic with New York Road Runners (NYRR), which organizes the event, NORD said in a press release.
The marathon is the premier event of the Road Runners and is held annually on the first Sunday of November. This year, runners from around the world will participate in person and virtually in the marathon, one of the most popular 26.2 miles in the world.
Tata Consultancy Services (TCS) is the title sponsor of the marathon, which is now in its 50th edition.
According to the NYRR, more than 400 organizations will participate this year in the official Charitable Partnership Program, which allows selected groups to raise funds to support their missions. Official charity partners can offer guaranteed entry to marathon runners who pledge to raise funds on their behalf.
Since its launch in 2006, the Official Charitable Partnership Program has raised more than $350 million for more than 1,000 nonprofits worldwide.
“NORD is thrilled to join the legion of amazing official charity partners for the TCS New York City Marathonsaid Peter Saltonstall, President and CEO of NORD.
“We’re constantly working to advance the rare community, and we’re also proud to race on their behalf,” Saltonstall said.
The rare disease advocacy organization already has its own charity running program, Running for Rare, or R4R, which started as a core team of four and has since grown to more than 250 runners. These NORD runners raise funds to support programs and services for people affected by rare diseases – and for patients who are still undiagnosed.
“Funds raised support undiagnosed patients, many of whom struggle to care for their health in the absence of an accurate diagnosis,” Saltonstall said.
All Running for Rare participants are paired with a community partner who specializes in rare diseases, with whom they connect throughout their training, right up to race day.
The program inspires runners to cross the finish line and allows each partner to tell their own story, raise awareness and find support from others facing similar challenges.
Over the past 12 years, the Running for Rare team has raised over $1 million.
“Together, as a community, we can take action, raise funds and raise awareness for rare diseases to help patients get the answers and care they need,” Saltonstall said.
Anyone interested in joining the Running for Rare team as a marathon runner or community partner can apply here. Companies can learn more about sponsoring R4R here.
“The marathon exemplifies the spirit of the running community to give back, and no group demonstrates that more than the thousands of people who choose to run for charity.“, concluded Burke. “We are proud to support the efforts of … NORD and the positive impact they have had on their community.